That old saying. .one step forward, two steps back seems a perfect place to start. With everything going on in our lives as of late, I expected it to hit eventually. Jon is doing great. He is continuing to improve more and more everyday. But lately it seems where he advances in some places he falls back in others. Now let me explain.
The other day we went out for our family night. We took the kids to IHop to eat. Well for the first time ever he sat with his back to the door! He didn't turn around or look over his shoulder once. I started crying my eyes out into my hash browns. He asked me what was wrong. I told him and his face broke out in the most pure and beautiful smile I have ever seen from another person. He did it without even noticing. Great right! That is a huge step for him and I couldn't be prouder.
The two steps back seems to be that his memory methods aren't working as great right now. For me that means extra note cards and lists and color coding. You ask well why do that, he is a grown man. You are right, he is a grown man.
He is a grown man who suffered a brain injury which healed without proper treatment. All things contained in the part of his brain that was injured poofed! Which means his short and long term memories took a beating, his processing took a beating, his ability to retain things took a hit too. All of these things can and will be treated but it takes time. A lot of time and hard work and effort on all of our parts to make sure he gets that back.
So for those of you who are wondering, well what does that mean? It means this. There are colored and white note cards on ever door in this house. They tell you what that room is for, each child's night time routine, each child's medication dosages, reminders to turn off lights and set alarms and reminders of medications and work times and things needed for said outing. It's a lot of work. Time and tears and frustration have gone into every aspect of our lives. It is so heartbreaking to see such a strong, willful, smart, amazing man struggle with day to day simplicities.
When it comes to work he can run off every piece of information you need at the drop of a hat. But when it comes to simple things like which child takes what medication he is lost. It hurts to see him that way because I know how strong and capable he is. He is the most amazing man with a heart of gold that it gets mixed up in things he can't remember
Last night was a rough one, our first in almost 7 months. I knew it was coming but I prayed it wouldn't. The tears and talking were just preludes to what was coming. I woke up at two o clock this morning pinned to the bed with the ball of his foot repeatedly making contact with my right shin and foot. He just kept saying " Let go you bastard, you aren't getting me this time".. .shocking I know. It was tame compared to some of the others he has had in the past years. I disentangled myself and crawled into the floor to wait it out. This one was relatively short as he opened his eyes a mere five minutes later and instantly found me in the floor. I was sitting against the wall rubbing my right foot attempting to uncurl the knot of pain that had taken up residence. He coaxed me back into bed, curled up around me, and went sound asleep. It was a relief.
The rest of the night passed without incident as he slept so soundly that he snored. One of the best things in the world for me is to see his brow relaxed, a smile tugging at the corners of his mouth, and his body relaxed in sleep.
Another day, another night, another step forward, two steps back. It is impossible not to see the many blessing in my life when I fight so hard for them.
I am bone tired, impossibly sore, feeling like crap, and I am curling up in my bed with my hubby man as we listen to our boys snore down the hall. Is my life perfect? Oh no. Is it hard? Most certainly. The best part is I love every single second of it.